Our day started rough, but by late morning we had found a medication routine that was working to keep Daniel comfortable and he slept a good part of the day. However, this evening shortly after the shift change Daniel got upset and began crying and screaming and trying to pull out his IV. His nurse was concerned and has conferred with the charge nurse and neurology and it was decided that we need to be moved to the pediatric intensive care unit for the night so Daniel can be more closely monitored and more heavily sedated. I am not happy about this, but they feel it is the best way to keep Daniel safe and keep all the meds going and the epidural in his back intact.
Please continue to keep us in your prayers. Thank you!
Update! Daniel is now sleeping so comfortably they don’t want to move him and get him riled up again, so we are staying put. Ugh, why do I always unpack when we go somewhere? I just totally repacked us to move, now we are staying. I’m just going to get out my bedding and sleep in my clothes. Harrumph! 😉