Our day started rough, but by late morning we had found a medication routine that was working to keep Daniel comfortable and he slept a good part of the day. However, this evening shortly after the shift change Daniel got upset and began crying and screaming and trying to pull out his IV. His nurse was concerned and has conferred with the charge nurse and neurology and it was decided that we need to be moved to the pediatric intensive care unit for the night so Daniel can be more closely monitored and more heavily sedated. I am not happy about this, but they feel it is the best way to keep Daniel safe and keep all the meds going and the epidural in his back intact.
Please continue to keep us in your prayers. Thank you!
Update! Daniel is now sleeping so comfortably they don’t want to move him and get him riled up again, so we are staying put. Ugh, why do I always unpack when we go somewhere? I just totally repacked us to move, now we are staying. I’m just going to get out my bedding and sleep in my clothes. Harrumph! 😉
Join Team Daniel 
Praying.
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“Come unto me, all ye that labour and are heavy laden, and I will give you rest.”
Matthew 11:28 KJV
We know it’s tuff be we will leave in Jesus’s hand.
“Finally, brethren, whatsoever things are true, whatsoever things are honest, whatsoever things are just, whatsoever things are pure, whatsoever things are lovely, whatsoever things are of good report; if there be any virtue, and if there be any praise, think on these things.”
Philippians 4:8 KJV
When the enemy comes into our minds and attacks our thoughts. We should remember Paul’s words. My prayers are still going out to your family. Daniel good job! Hi five from your friends at CSCC.
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Sorry to hear he is having a hard time poor baby. Praying for you all to get through this.
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Very delicate situation. My heart breaks for you all. For a parent, seeing their child in anguish is a difficult thing. Wading through Evan’s sickness, Our faith was challenged, our patience shredded, and our questions in wondering if we’ve made the right decisions was haunting!! We were pushed well beyond what we could understand or deal with in our heart, minds and our belief. It was at this point where there was no where else to go, but Jesus. I know well your courageous spirit and your strong faith, with the prayers of many, will hold you strong through the storm! My prayers are with you, as our love for your family, especially Daniel is on our minds constantly. Thank you for keeping us informed. Hope you have a better day!! Jeff and Debbie Gibbons
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